FRAMINGHAM – There is a fundraiser on April 10 at Bourbon’s to support the five Boston Marathon runners raising money for the Why Not Devin Foundation.
Tickets are on sale at www.theWhynotdevinfoundation.org.
The goal of the WhyNotDevin Foundation to End DIPG is to help alleviate a part of the enormous financial burden this diagnosis carries for families.
Tickets are $25 ahead of time $30 at the door.
The event will feature live music, raffles, auction, 50/50, taco bar, drink specials to help the WhyNotDevin marathon runners reach their fundraising goals, said Christine Soutter, the founder of the Foundation and one of the five runners.
The event is from 2 to 6 p.m. at Bourbon’s Kitchen & Cocktails.
Soutter’s son Devin died of DIPG in 2017.
“At six years old, after falling off his snowboard in January 2017 and seeing a doctor about a possible concussion, was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG). DIPG is a rare pediatric cancer that is aggressive and unforgiving. The tumor is located in the brain stem, and tragically, because of its location, it is inoperable and has no known cure. Devin’s family was told that he had just eight months to two years to live. The news was crippling to Devin’s family, but they knew, someone would have to be the first to beat DIPG-Why Not Devin? … DIPG, because of its rarity, gets very little funding, research, or backing from the medical community. That has to change! Our children deserve a chance to grow up. On October 20, 2017 just shy of nine months following his DIPG diagnosis, and just one week before what would have been his 7th birthday, Devin lost his battle with DIPG. The world lost a superhero, and a family lost their baby.”
In 2020, the Foundation was formed as a 50c13 organization.
The other runners are Danielle Goodwin, Brian Abraham, Ashlee Rogers, and Maria Proia.