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Today is DIPG Awareness Day. Diffuse Intrinsic Pontine Glioma (DIPG) remains one of the deadliest forms of childhood cancer, with a long-term survival rate of less than 1%. An especially aggressive type of cancerous tumor, DIPG grows in an area of the brain stem, which is responsible for many critical bodily functions like heartbeat, breathing, swallowing, eyesight, and balance. Unfortunately, the average lifespan after diagnosis with DIPG is only nine short months.
Today, the City of Framingham remembers the late Devin Suau died at the age of 6 from DIPG on October 20, 2017. He fought valiantly, like a superhero, against DIPG.
His family, including his mom, still fights to cure DIPG with the Whynotdevin Foundation
“My family would like to thank and acknowledge Devin’s Army – the City and its employees, neighbors, and friends for recognizing May 17 as #DIPGAwarenessDay Your support over the years has truly kept Devin’s spirit alive,” said Devin’s Mom Christine Soutter.
“It is our hope that the Federal Government will some day recognize this day as well,” said Soutter, who said Massachusetts Governor Maura Healey has proclaimed today DIPG Awareness Day in the Commonwealth.
“With awareness, we hope that the proper research, resources, and funding are put forth to end DIPG,” said Soutter.
Framingham’s Memorial Building will be lit up green tonight to mark DIPG Awareness Day.