FRAMINGHAM – Massachusetts Governor Charlie Baker has declared Tuesday May 17 as DIPG Awareness Day in the Commonwealth.
Diffuse Intrinsic Pontine Glioma (DIPG) remains one of the deadliest forms of childhood cancer, with a long-term survival rate of less than 1%.
Many in Framingham learned of the disease when the late Devin Suau was diagnosed with the disease in early 2017.
He died 8 months after his diagnosis, just days before his 7th birthday in October 2017.
An especially aggressive type of cancerous tumor, DIPG grows in an area of the brain, where many critical bodily functions like heartbeat, breathing, swallowing, eyesight, and balance occur. Unfortunately, the average lifespan after diagnosis with DIPG is only nine short months.
City of Framingham Mayor Charlie Sisitsky personally delivered the declaration by the Governor to Devin’s Mom Christine Soutter. He was joined by at-large City Councilor Janet Leombruno.
Devin’s mom has requested individuals do an act of kindness on this name in remembrance of Devin, in the past.