FRAMINGHAM – The 5th Annual Devin’s Dash 5K was held this morning, November 7, to raise awareness about DIPG and to raise funds for the #whynotDevin Foundation. The race is a fundraising event to help financially support children with DIPG and their families.
The first Devin’s Dash was held at Walsh Middle School in fall of 2017.
Last year’s event was virtual due to the pandemic.
This year’s event was once again held at Jack’s Abby.
Devin’s Dash was established for Devin Suau who was diagnosed in January 2017 at just 6 years old. Devin lost his courageous battle after just 8 months and 3 weeks.
Diffuse Intrinsic Pontine Glioma (DIPG), is a very rare and aggressive form of cancer typically found in children ages 5-9. Only 300-400 children in the United States each year are diagnosed with DIPG as they struggle to find a cure. This type of tumor is located at the base of the brain and the top of the spine. Over time, it will impact all of these children’s essential bodily functions: heartbeat, breathing, swallowing, eyesight and balance. The life expectancy for
children diagnosed with DIPG is 8 months to 2 years. As treatments are completely experimental, the cost for trial drugs, activities, and therapies are hundreds of thousands of dollars.
The WhyNotDevin Foundation to End DIPG is a non-profit foundation whose mission is to support families battling DIPG in a variety of ways including helping families get treatments, provide direction on fundraising, spreading awareness, and giving a grant quarterly to a family with DIPG and annually to a local family with pediatric cancer.
Devin’s mom Christine Soutter ran in the 5K and wore bib #2.
SOURCE will have more photos from the event this week.