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FRAMINGHAM – The WhyNotDevin Foundation to End DIPG will once again team with Jack’s Abby to host its annual Devin’s Dash 5k on November 7.
The race is a fundraising event to help financially support children with DIPG and their families.
Devin’s Dash was established for Devin Suau who was diagnosed in January 2017 at just 6 years old. Devin lost his courageous battle after just 8 months and 3 weeks.
Diffuse Intrinsic Pontine Glioma (DIPG), is a very rare and aggressive form of cancer typically found in children ages 5-9. Only 300-400 children in the United States each year are diagnosed with DIPG as they struggle to find a cure. This type of tumor is located at the base of the brain and the top of the spine. Over time, it will impact all of these children’s essential bodily functions: heartbeat, breathing, swallowing, eyesight and balance. The life expectancy for
children diagnosed with DIPG is 8 months to 2 years.
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As treatments are completely experimental, the cost for trial drugs, activities, and therapies are hundreds of thousands of dollars.
The WhyNotDevin Foundation to End DIPG is a non-profit foundation whose mission is to support families battling DIPG in a variety of ways including helping families get treatments, provide direction on fundraising, spreading awareness, and giving a grant quarterly to a family with DIPG and annually to a local family with pediatric cancer.
“We are moving forward in Devin’s memory to support other families going through the same difficult journey to fight for their child’s life.” said Christine Soutter Suau, Devin’s mother and President of the Foundation. “We are so thankful to all of our generous sponsors and especially our partner, Jack’s Abby for their continued support and dedication to helping our foundation end DIPG.”
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The race will begin and end behind Jack’s Abby located at 100 Clinton Street in Framingham at 11 a.m., rain or shine. The course will be chipped-timed.
Runners and walkers can register for $35 on race day from 9:30 to 10:30 a.m. at the registration tent in the Jack’s AbbyJack’s Abby Beer Hall & Kitchen parking lot.
Devin’s Dash 5k will be emceed by 96.9 Morning Show’s own Ramiro Torres. In addition to the 5k, there will be fun activities for the kids – jumpy house and obstacles (donated by Viking Sports), tattoos, raffles, and great auction items.
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After the run, awards will be announced: male and female winners over 21 along with male and female winners under 21. All local runners over the age of 21 will get one ticket for a House Lager or Blood Orange Wheat to enjoy in Jack’s Beer Garden or inside the brewery. We also invite the WND community to join us inside to bid on the silent auction items and enjoy a House Lager – a portion of the proceeds directly benefit WhyNotDevin!
For more information or to make a donation, please visit www.thewhynotdevinfoudation.org
MetroWest Medical Center