FRAMINGHAM – Friday is National DIPG Awareness Day.
Massachusetts Governor Charlie Baker has declared today, May 17, DIPG Awareness Day in Massachusetts.
Framingham first became aware of DIPG when Devin Suau, 6, was diagnosed with the disease in 2017. He died the same year he was diagnosed.
Diffuse Intrinsic Pontine Glioma (DIPG), is a very rare and aggressive form of cancer typically found in children under the age of 10. There is no cure and no one has survived the diagnosis.
The family had hoped Devin would be the first to defeat the disease and launched a #WhyNotDevin campaign.
Sadly, Devin died on October 20, 2017, just days shy of his 7th birthday.
His mom Christine Suau is still fighting for a cure.
On Friday, wear green to honor Devin, and support an organization that is helping to fund a cure for DIPG, including ww.defeatDIPG.org