Updated at 8:28 p.m.
FRAMINGHAM – Christine Suau was planning on running the 2017 Boston Marathon to support the Susan G. Komen Foundation.
But in January, the youngest of her four sons Devin was diagnosed with DIPG, an inoperable brain tumor.
Suau originally said she would not run the entire 26.2 miles but would join her friend Lorelei Capuzzi for part of her marathon journey in support of Devin’s Army and #WhyNotDevin, an awareness campaign launched by Christine and her husband James, hoping that their son will be the first to defeat DIPG.
But late Sunday night, Suau wrote she was “going to try to run the entire thing with my dear friend Lorelei … I plan to take it one step at a time.”
“Tomorrow is not about the fastest time it’s about finishing,” wrote Suau. “I am going to channel Devin tomorrow. I am going to channel my mom tomorrow. When I received my bib I thought that I would run with a shirt that said “I run for my mom who couldn’t and for my boys who can”. Tomorrow I will run with a shirt that says “Devin’s Mom” on the front and “Devin’s Army” on the back. It is not at all where I ever thought I would be on Marathon Monday. But we are here. And we are taking it one step at a time. I am not anywhere prepared to run 26.2 miles. But as I have realized recently no one is ever really prepared for life’s turns. But you do what you have to do.”
Tomorrow with be Capuzzi’s fourth marathon, and her second Boston Marathon. She first ran Boston in 2014, as part of Team Framingham.
“This year, I run Boston for a very special little boy, Devin Suau and his family,” said the Framingham mom.
“The BAA and Katie and Mike Milewski, together with Jessica Cochrane, generously provided a bib, allowing someone to raise money to directly support Devin in his battle against DIPG, an inoperable brain tumor with as of yet, no known cure,” said Capuzzi.
“Despite a lack of training, I was eager to do something tangible to support my friends Christine and Jay through an unimaginable nightmare,” said Capuzzi. whose kids are friends with the Suau boys.
“So it’s with tremendous love and a dash of recklessness, that I will journey from Hopkinton to Boston in support of the force to be reckoned with that is, Devin Suau. I’m honored to be a foot soldier in Devin’s Army and grateful to the tireless Jessica, for all of her support with fundraising for our friends,” said Capuzzi.
“My goal for running Boston in 2017 is to show Devin and his family that I love them and support them and to bring awareness to DIPG and all those affected by it,” she said.
“Having been giving the opportunity to run just a few weeks ago, my training has been minimal and insufficient,” said Capuzzi. “I’m confident that with Christine by side for any portion of the run and thoughts of this incredible little boy, love will get me through it.”
Devin has been named the honorary captain of Team Framingham 2017.