UPDATED: Originally posted at 1:05 a.m. Updated to include the community support for Devin at 8:15 p.m. in Framingham
FRAMINGHAM – Today is the first-ever DIPG Awareness Day in Massachusetts and in 19 other states across America.
Massachusetts Governor Charlie Baker declared the day earlier this month, when he met the Suau family of Framingham. The youngest of Christine and James Suau’s four sons Devin was diagnosed with the incurable disease in January.
Since then, the family has launched the #WhyNotDevin with the hopes that he will be the first to defeat the brain cancer.
Today, the Suau family is asking that supporters wear green.
Tonight, the Town of Framingham will highlight the Memorial Building with green lights.
The community is asked to come to the Memorial Bulding tonight at 8:15 p.m., wear green, and support Devin and his family. The event is organized by Haley Dutchka.
Also tonight, several Boston landmarks will be green to support Devin Suau and DIPG awareness. They include the Zakim Bridge, City Hall Plazza, Prudential Tower, North Station an Government Center.
The Suau family will not be able to view the gesture, as they are in London hoping for a miracle treatment and surgery for Devin.
“I’ve been praying for a sign on where to go and when,” Christine wrote on the #WhyNotDevin Facebook page. “It is a coincdence that we are starting this part on May 17? DIPG awareness day?! Please God let Devin be the face of hope for DIPG. Devin’s surgery will be on Sunday. Please please please keep him in your thoughts and prayers. We need as many as we can get. So much love to you all. We are truly so blessed to have you all in our lives.”