BOSTON – The Suau family of Framingham met with Governor Charlie Baker at the State House today, May 3.
He signed a proclamation to make May 17 DIPG Awareness Day. Thank you for helping us to spread
The Governor signed a proclamation to make May 17 DIPG Awareness Day.
The youngest of Christine and James Suau’s four sons, Devin, was diagnosed with the Diffuse Intrinsic Pontine Glioma (DIPG) earlier this year. The incurable tumor that forms at the base of the brain is highly aggressive and difficult to treat. At the moment there is no cure, and the life expectancy is less than 2 years.
“Thank you for helping us to spread much needed awareness to this non curable, non funded awful disease,” wrote Christine Suau.
The Suau family started the hashtag #WhyNotDevin to bring awareness to the disease and the hopes that their son will be the first to defeat rare brain tumor.
“Devin was very excited because Governor Baker treated him to Dunkin Donuts,” she wrote on the Facebook page #WhyNotDevin.