UPDATE: As of 6 a.m. February 1, almost $90,000 has been raised in just one day.
FRAMINGHAM – Last week, a Framingham family learned their youngest of four sons was diagnosed with an inoperable brain tumor.
Devin, 6, who attends Stapleton Elementary School, was given a life expectancy of 8 months to 2 years.
In less than 15 hours, $51,801 has been raised by almost 500 people, as of 1 p.m. today, January 31.
His mom Christine said she is “blown away with the amount of support” for her son and their family.
Doctors told the Suau family that Devin has a tumor known as Diffuse Intrinsic Pontine Glioma (DIPG). It is a very rare and aggressive form of cancer typically found in children ages 5-9. Annually, only 200-300 children in the United States are diagnosed with DIPG, which has no cure. The tumor is located at the base of the brain and at the top of the spine.
Over time, it will impact all of little Devin’s essential bodily functions: heartbeat, breathing, swallowing, eyesight and balance, wrote his aunt.
“As I’m sure you can imagine my brother James, sister in law Christine and our families are deeply shattered by this news. James and Christine met one of the first days of freshman year in college and have been together ever since. Their dream of having a big family came true with 4 beautiful boys, all 12 and under; Colin, Owen, Brenden and Devin. Their lives are devoted to these kids and the family,” wrote Amy.
The boys attend Stapleton Elementary and Christa McAuliffe Charter schools in Framingham.
Doctors at Boston Children’s Hospital have informed the family that radiation treatments are the best they can do to keep Devin comfortable for his remaining time.
“As we struggle to pick our heads up and grasp what we are being told we just simply cannot allow this to happen without a fight. We have been calling doctors, sending scans and turning to clinical trials to see if any breakthrough treatments exist,” wrote Amy on the GoFundMe page. “With all of these efforts comes a financial burden that no family should have to worry about while desperately trying to save the life of their child.”